Serenity…In Life’s Challenges
July 29, 2008 by Ryan
Our experience with Jeremy’s spina bifida has been a trying time in our lives: learning the worst-case scenarios, not know the extent of the paralysis or problems, moving only two days before Jeremy was born, the harrowing race to the hospital, watching him go through surgeries to close his back and place his shunt. People that have been under similar kind of stress know what that pressure is like. Luckily, we had tremendous support from family, friends, doctors, nurses, and work. I really needed to talk about it. Sorry to those that had to listen, but it helped to relieve the burden I felt.
One of the many lessons I’ve learned from all this is that everyone has challenges that they are going through! My eyes were sort of opened to the situations around me. One situation that was very close in timing with our experience is that of Phil Burns’ daughter Serenity. I read one of Phil’s posts about Serenity’s chemo and it tore me up because my Kimberly is the same age! Phil has dedicated himself to fighting cancer however he can. One way is a blood drive. It’s tomorrow and I know most of you wouldn’t be able to make it, but it brings to my mind the importance of giving blood. I hate it, and my wife is much worse with needles, but it’s more important than that. It really is a shame how few people donate.
If you can make it, wonderful! But if you can’t, make it a goal to donate in your area. I’ve chatted with Phil a few times about the frustrations, fear and anger a father feels when he can’t protect his child. Hopefully, I’ve been able to share his burden those few times we’ve talked. Do the same. Take the time to notice suffering around you and offer a helping hand, or even just an understanding ear.
We’re Home!
March 11, 2008 by Ryan
We’ve had Jeremy home now since last Friday and it is wonderful! Obviously, much more comfortable to be home and to be together with our little girl too. She has been so sweet to him. I can’t believe how well Jeremy is doing! He’s an eater! We’ll get Jeremy TV back up and running here soon. Thanks to everyone for all their love and support!
Jeremy Aint Gonna Be a Leap Year Baby!
March 2, 2008 by Ryan
Jeremy Michael Miller was born February 27th, 2008! He has a little hospital stay to get through and so we have a live feed setup if you want to check in on how he’s doing (he’s doing great!)
Pray for Jeremy
November 27, 2007 by Ryan
It’s hard to describe the emotional rollercoaster my family has been through this last 2 weeks. For those of you who have not heard, we have some concerns for our little boy, Jeremy Michael. He’s due in early March. I’ve waited to write about this until my wife had and she did a good job of explaining what we’re up against.
We’re Pregnant!
When we found out we were pregnant it was a pleasant surprise: we weren’t trying, but we weren’t not trying. It actually was about perfect because the baby would be about two years apart from our daughter Kimberly. I really did not care whether it was a boy or a girl. If it was a girl, Kimberly would have a sister right close to her age. If it was a boy, hey! it’s our first boy!
Saying Hi to Jeremy
About two weeks ago, we went in for our doctor’s ultrasound. I just Twittered…
Just saying hi to Baby Jeremy @ my wife’s ultrasound!
After the ultrasound, I went to take care of Kimberly as Beth went to go talk to the doctor. The doctor called me in. She said us down and told us they saw some things that concerned her and that we’d need to go see a specialist. Needless to say we were in quite a bit of shock. I think I had always assumed everything would be okay. I think most parents in general think that way.
We went to see the specialist the next day, which was nice to not have this unknown hanging over our heads for too long. He did another ultrasound and then sat us down to talk about it. Again, I’m not going to rehash all the details, Beth did a good job in her post. From that discussion we were faced with that reality that our little boy had Spina Bifida and the possibility of worse. The doctor explained that there might be a chromosome defect and we then spoke with a genetic specialist. She told us that the most likely of the rare problems we could have would be Trisomy 13, which would most likely mean we wouldn’t have him for very long.
Perspective
I was going to write that it “hit us like a ton of bricks” but, honestly, we were fairly calm about all of it. There have been things that have come up in the last while that, I believe, happened to prepare us. We’re very blessed to have the perspective that we do. We know that whatever happens, in the grand scheme of things, we’ll be okay. We know that if he was only with us a short time, we wouldn’t be losing him forever. If we do get to have him, whatever challenges he’s going to have we can do it. Not on our own, but with the Lord’s help. We have wonderful families that will be there. We know that we’ve been seal as a family, and that we will be together after this life.
The Results
As it turns out, I have been writing this post here and there since that time and we found out that there are no chromosome problems! And we are so grateful and happy that there aren’t. I want to thank all those that prayed for us. One of the first thoughts that I had was to call my family and ask them to pray for Jeremy. And we still need those prayers and that faith. Now we know that Jeremy will be with us for a long time and now we are praying that he will be able to walk and not require a shunt.
I am so excited to have him. I love him already. Knowing how much I love Kimberly, I can’t wait to have my little boy!
